I haven't been on here in a while. That might be because I have had the opportunity to digest what has been happening. Over the last few months, the tingling has now stopped, and so has most of the twitching. The medication has started to work, and because of the reduction of symptoms we have …
On hope
Sometimes I just want to crawl deep inside despair. The fear of having hope and trust and then having reality take it away seems unworthy of my stability. I want to stay inside my cave where I take no risks and allow no error or failure. This week, I received some good news. My electrical …
On Mentorship
About 5 years ago, my grandfather died from Parkinsons. He was the best mentor I have ever had and his lessons are still with me today. I even have a little tattoo which reminds me of our conversations. He would have HATED it. When I was growing up, I was straight up afraid of my …
Women who fuck with fear
Spending an exorbitant amount of time in my new favourite self care place, my bath, has given me a lot of time to read. I started the year with a history brief on the teamsters and the story of Frank, the Irishman. A solid start, crime based history lesson of the teamsters in the United …
Practicing Vulnerability
I stood in front of a room of strangers and shared that I twitch. Have I gone mad? Probably. My adventure down the path of allowing myself to be vulnerable continues to be a hike up a steep hill. Every step is painful, but I can feel myself reaching the peak where I can be …
Creating Space
I used to keep myself excessively busy. Never home long enough to get comfortable; always with a plan. Lately, I have had to force myself to slow down and create space despite every instinct to self sabotage. This has meant seeing less friends (and sometimes losing friends), declining events or volunteer opportunities and other chances …
Keep moving, my friend
At the beginning, I stopped seeing friends and communicating with family. I spent all my time with a heating pad in bed or in my bath, a new found place of peace. Eventually, I had to get used to my body’s rebellion and continue living my life. Seeing friends, volunteering, educational undertakings, is slowly becoming …
When to keep your mouth shut
My first instinct was to genuinely share my twitching situation with my employer and colleagues. This was met with unfettered kindness. Being honest has been instrumental in managing my schedule in order to make appointments. A couple weeks in, I began to read MS resources. They are exceptionally organized and those resources have been truly …
On being open; even if it means having a needle in your upper buttocks
Acupuncture has never been on my to-do list. I was a little shocked when those little needles entered the top of my right butt cheek. The electronic buzzes throughout my body as the needles were linked up to a shock machine felt akin to someone tapping me lovingly; many small love taps. Laying on my …
Continue reading On being open; even if it means having a needle in your upper buttocks
Buying into that self-care crap
Our friend Robert died of Parkinsons this year. He was one hell of a character. Favourite word: fuck. Favourite way to spend time with us: teasing. He would tell you what he thought without fear of consequence, debate no matter how outlandish, and lavished in a friend’s comeback. He was a force. And I will …
Me Without Caffeine 