Creating Space

I used to keep myself excessively busy. Never home long enough to get comfortable; always with a plan. Lately, I have had to force myself to slow down and create space despite every instinct to self sabotage. This has meant seeing less friends (and sometimes losing friends), declining events or volunteer opportunities and other chances …

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Keep moving, my friend

At the beginning, I stopped seeing friends and communicating with family. I spent all my time with a heating pad in bed or in my bath, a new found place of peace. Eventually, I had to get used to my body’s rebellion and continue living my life. Seeing friends, volunteering, educational undertakings, is slowly becoming …

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When to keep your mouth shut

My first instinct was to genuinely share my twitching situation with my employer and colleagues. This was met with unfettered kindness. Being honest has been instrumental in managing my schedule in order to make appointments. A couple weeks in, I began to read MS resources. They are exceptionally organized and those resources have been truly …

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On being open; even if it means having a needle in your upper buttocks

Acupuncture has never been on my to-do list. I was a little shocked when those little needles entered the top of my right butt cheek. The electronic buzzes throughout my body as the needles were linked up to a shock machine felt akin to someone tapping me lovingly; many small love taps. Laying on my …

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The majority of people are kind

Throughout this experience, I have been overwhelmed with the kindness of others. A husband who supports me without failing to push me out of bed and not allowing me to hang out in a depressive state for too long. Family taking an active part in the journey, checking in and ensuring I am keeping up …

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Focusing on what you can control

Feeling like my body is the one in charge, I have started to make decisions based on what I can control. Exercise has increased to 5 times a week with a mixture of boxing, swimming, jogging and weight training. Reassured by the ability to order my body around, I have thrown myself into it; because …

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Life can suck but you sure can make it worse

Fearing paralysis, I sent myself into an absolute frenzy and panic. This aggravated my symptoms to a whole new level. A very friendly doctor in emergency saw me, and conducted a number of physical tests. She calmly told me that my reflexes and muscles were responding in a healthy way, and it was unlikely to …

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